Broken Dialogue, Broken Trust: The Importance of Cultural Competency in Healthcare

Leave a Comment / Clinical Research, Patient Advocacy, Uncategorized /

I had an enlightening conversation with my insurance representative that underscored some critical issues in healthcare. It began as a casual chat about my work in promoting clinical trials and strategies for diverse patient enrollment. To my surprise, she shared a personal story about her cousin, who recently had a stroke, highlighting the difficulties her […]

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Beyond the Dinner Table: Building Trust in Clinical Trials for Black Communities

2 Comments / Clinical Trial Enrollment, Clinical Trials, Patient Advocacy /

Imagine opening your medicine cabinet and finding every bottle untested. That’s the reality without clinical trials, the cornerstone of medical progress. Yet, participation in these trials remains low within Black communities. This lack of participation creates a double-edged sword: Black people may use medications that haven’t been fully tested for their specific biology, potentially leading

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The Enigma of Clinical Trial Enrollment: Do Sponsors Truly Benefit?

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In clinical trials, achieving efficient patient enrollment has long been daunting. Despite industry claims about the importance of enrollment, issues persist, prompting questions about its actual benefits for sponsors. Do sponsors, the entities funding these trials, genuinely benefit from significant improvements in enrollment rates? This article delves into the complexities surrounding clinical trial enrollment and

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Getting Comfortable with Uncertainty – Trusting God One Breath at a Time

Leave a Comment / Christian, Mental Health /

As I sit here this Sunday, I reflect. This weekend, I’ve been striving to focus on what I need. My husband and 4-year-old daughter were out enjoying the Main Street Festival, so I had some much-needed time to think. I planned to use this time alone to tackle some household chores—cleaning, doing the dishes, organizing

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Cutting-Edge Treatments Held Hostage: Reimagining Clinical Research for the Patients We Serve

Leave a Comment / Clinical Research, Clinical Trials, Patient Advocacy /

Clinical research – a world that promises cutting-edge advancements, a beacon of hope for suffering patients…  But the reality?  It’s a slow-moving, bureaucratic puzzle that leaves patients more like forgotten afterthoughts. Yes, I said it. Clinical research often sucks. We talk a big game about patient-centricity, yet our systems leave them waiting in the dust.

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Finding Hope in a Sea of Laminated Paper: A Look at Broken Processes in Clinical Trials

Leave a Comment / Clinical Trial Enrollment, Patient Advocacy /

Imagine this: your loved one is battling a serious illness, desperately seeking any glimmer of hope. You hear about a potential clinical trial, a chance to fight back, but the only information you receive is a single, inconspicuous blue sheet tucked away in a mailbox. That’s the reality faced recently, and it highlights a glaring

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The Heartbreak of Waiting: How Delayed Clinical Trials Are Costing Lives

Leave a Comment / Clinical Research, Clinical Trial Enrollment, Clinical Trials /

Did you know that, on average, it takes a whopping 12 years for a drug to progress from the early stages of research to market availability?** ([Sources: National Institutes of Health, PhRMA]). 12 years of potential lost opportunities for patients like my friend, desperately in need of new treatments. This timeline isn’t just a statistic;

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