Patient Advocacy

Broken Dialogue, Broken Trust: The Importance of Cultural Competency in Healthcare

I had an enlightening conversation with my insurance representative that underscored some critical issues in healthcare. It began as a casual chat about my work in promoting clinical trials and strategies for diverse patient enrollment. To my surprise, she shared a personal story about her cousin, who recently had a stroke, highlighting the difficulties her […]

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Beyond the Dinner Table: Building Trust in Clinical Trials for Black Communities

Imagine opening your medicine cabinet and finding every bottle untested. That’s the reality without clinical trials, the cornerstone of medical progress. Yet, participation in these trials remains low within Black communities. This lack of participation creates a double-edged sword: Black people may use medications that haven’t been fully tested for their specific biology, potentially leading

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Cutting-Edge Treatments Held Hostage: Reimagining Clinical Research for the Patients We Serve

Clinical research – a world that promises cutting-edge advancements, a beacon of hope for suffering patients…  But the reality?  It’s a slow-moving, bureaucratic puzzle that leaves patients more like forgotten afterthoughts. Yes, I said it. Clinical research often sucks. We talk a big game about patient-centricity, yet our systems leave them waiting in the dust.

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Finding Hope in a Sea of Laminated Paper: A Look at Broken Processes in Clinical Trials

Imagine this: your loved one is battling a serious illness, desperately seeking any glimmer of hope. You hear about a potential clinical trial, a chance to fight back, but the only information you receive is a single, inconspicuous blue sheet tucked away in a mailbox. That’s the reality faced recently, and it highlights a glaring

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